Madhya Pradesh

There are a total of 7 projects in Madhya Pradesh, which are

Technical Resource Unit (TRU) – LEPRA established the Technical Resource Unit (TRU) in Madhya Pradesh in 2008 providing one NLEP consultant and one Technical Officer to extend technical support to the state leprosy department for strengthening the District Nucleus Teams (DNT), referral systems and DPMR activities as per the state leprosy control programme plan. The TRU will also offer technical support to government health services under different thematic areas like capacity building, monitoring & supervision, and operational research. The NLEP consultant works in the Health Directorate to monitor on a day-to-day basis the NLEP activities and offers technical assistance to the State Leprosy Officer of the MP Govt. 

SAMARTH is a pilot project, funded by Effect Hope, and being implemented for a duration of one year in 3 development blocks of Chhatarpur district of Madhya Pradesh namely – Gaurihar, Luvkush Nagar and Rajnagar. 

Three different interventions are implemented in 3 Development Blocks that shall be assessed at the end of the project and based on the most effective intervention a larger project will be designed to replicate in a larger area. 

Goal – Improved health and psychosocial outcomes of  people affected by leprosy and LF, through sustainable community and health system-based interventions 

Objectives – 

  1. Improved community-based MMDP services (including mental health) for people affected by leprosy and LF 
  2. Improved health-seeking behaviour among people affected by leprosy and LF in SSGs 
  3. Reduced social consequence due to leprosy and LF 

Three Arm Strategy as Essential Care Package – 

  •  ARM A – SSG Intervention at Gaurihar Block 
  • ARM B – Mindfulness Activity + SSG Intervention at Rajnagar Block 
  • ARM C – Peer Counsellors Intervention + SSG Intervention at Luvkush Nagar Block 

Targeted Population (estimated ) 

  • Total – 1200 
  • Leprosy affected – 480 
  • LF affected – 720 

Main Activities – 

  • Receiving line list from the Govt. departments (NLEP and NVBDCP) 
  • Baseline survey of all the patients according to the line list 
  • SSG formation and training on self functioning as well as practicing Self care activities and Advocacy with Govt. on welfare schemes for the SSG members 
  • Training of Govt. frontline workers (ASHAs & ANM) on Leprosy, LF. SSGs and mental health issues related to the diseases. 
  • Execution of Mindfulness Activity in ARM B 
  • Training of Peer Counsellors and Execution of Peer Counsellors activity in ARM C 
  • Making footwear for Leprosy and LF affected patients according to their grade and need. 
  • Conducting IPOD Camps 
  • Distribution of Self Care Kits 
  • Printing of IEC as per requirement 
  • Endline surveyl 

Referral Centre Sendhwa – Barwani district is very high endemic district for leprosy since last four decades and to restore functional ability of persons affected with leprosy, disability prevention and medical rehabilitation especially tribal populations, LEPRA established referral centre in civil hospital premises of high burden block Sendhwa in 2016. The referral centre provides the following services to persons affected with leprosy in Indore: 

  • Identification and treatment through Indoor Patients Department (IPD) and OPD services 
  • Prevention of disability through comprehensive care 
  • Referral and linkages with other districts of Indore division for treating complicated cases 
  • Awareness activities in the vicinity of Indore referral centre 
  • To provide specialised protective footwear 
  • Physiotherapy and counselling 
  • Ulcer care and treatment 
  • Linkages and referrals of cases for RCS St. Joseph’s Leprosy Centre, Sanawad 

St. Joseph Leprosy Centre (SJLC) is situated in the Khargone district of Madhya Pradesh. The centre was started to eradicate leprosy and provide holistic relief to the patients in accordance with the National Leprosy Eradication Programme (NLEP) guidelines. The SJLC initiated the leprosy control programme covering a population of 2,05,077 across Barwani, Bhikangoan, and Maheswar blocks. In 2005, the project started a surgical unit, fully equipped operation theatre, physiotherapy unit, in-patient ward with 24 beds and shoe unit to provide reconstructive surgery services in seven districts of Indore division. 

The aim of the project is improved health and social status of persons affected by leprosy through quality health care services, with the following specific objectives: 

  • To restore and improve the functional capacities of persons affected by leprosy through reconstructive surgeries 
  • To address the needs of persons affected by leprosy, affected persons referred from primary health centres, government, community and also provide specialised treatment/services through referral centre 
  • To generate demand for services and mainstream persons affected by leprosy with the existing government schemes 

CHAHA Project – LEPRA is a people-centric organisation and values the contribution made by its beneficiaries. Education support for children is a prioritised support requirement by the served constituency. LEPRA is able to fulfill the demand marginally, due to a lack of resources. The primary purpose of this project is to ensure access for children to pursue their education (formal and remedial) and the immediate well-being and holistic development of children with leprosy. The primary beneficiaries include deserving children who are unable to go school due to poverty, children, and adolescents who discontinued their education and are seeking skill development opportunities as well as those who are unable to pursue their higher education. The project covers 4 leprosy endemic districts of MP. 

SANKALP Project is working intensively in the Panna District covering Ajaigarh, Panna, Gunour, Pawai and Shahnagar Blocks (equivalent to 395 Gram Panchayat Villages). These Blocks are co-endemic for LF and leprosy. 

In fact, the National Vector Borne Disease Control Programme has identified 11 endemic Districts for LF including Panna. For leprosy, NLEP data shows a very high disability ratio amongst new leprosy cases in Panna District (20.48% Grade 2 Disability). Amongst the total 166 new leprosy cases detected in the district, 53.6% of them were MB cases; the PR was 1.8 and the ANCDR 15%. This indicates a delay in detection mostly due to the absence of active case detection campaigns. 

Moreover, the Panna District shares a border with Uttar Pradesh in the North, and discussions at the state and district level indicate that LF cases are concentrated at the interstate border. Working in Ajaigarh will therefore be key. 

Historically, Panna has always been identified as a highly endemic district for LF. In the past, the Panna Filaria Unit was a State training centre and all the major prevention and control activities of the neighbouring districts were planned and implemented by this unit. 

AHANA Project: Mother to Child transmission of HIV is the primary rout of transmission of HIV among children. This transmission is known to occur during the pregnancy, delivery and breast-feeding period with equal frequency.  It is estimated that without any intervention the risk of transmission of HIV from infected mother to child is 20% to 45%. Global evidence suggest that by early testing and ARV intervention with pregnant women and new born baby dramatically reduce mother to child transmission of HIV rate less than 5%.  Prevention of Parent to Child Transmission programme is to prevent HIV transmission and mitigate the impact of HIV by expanding access to testing, counselling and prevention of parent to child transmission Services, strengthening inter-program linkages, especially HIV and TB collaboration and integrating HIV Services with the general health system. 

The objective is to ensure that pregnant women who are diagnosed with HIV would be linked to HIV services for their own health as well as to ensure prevention of HIV transmission to new-born babies under the PPTCT programme.

Joint Effort to Eliminate Tuberculosis (JEET) Project – India has the world’s largest burden of tuberculosis (TB). Over the past two decades, India’s Revised National Tuberculosis Control Programme (RNTCP) has made notable progress in reducing TB deaths, through the provision of basic TB services via the public sector. Nonetheless, major challenges remain: healthcare in India is dominated by the private sector, where the majority of patients first seek care. Private healthcare providers often use inaccurate diagnostic tests for TB or omit to test altogether, leading to diagnostic delays while patients cycle between different providers. Even once patients are diagnosed, a general lack of treatment adherence monitoring and support is unfavourable for long-term treatment outcomes. 

Moreover, although tuberculosis was made a modifiable disease, there remain major challenges in encouraging private providers to comply with these obligations. For these reasons, India’s recently-announced plan to eliminate TB, private sector engagement forms a key strategic priority. 

Number of people impacted through projects in Madhya Pradesh

Project Direct Beneficiaries Indirect Beneficiaries Category of Direct Beneficiaries Categories of Indirect Beneficiaries
Technical Resource Unit 5470 47500 Persons affected with leprosy Spouse, family members, children
Referral Centre Sendhwa 705 4230 Persons affected with leprosy Spouse, family members, children
St. Joseph Leprosy Centre 2336 309147 Persons affected with leprosy Spouse, family members, women groups, SHGs, school children
CHAHA 142 Children affected with leprosy
SANKALP Leprosy – 1086
LF – 1115
53677 Persons with leprosy and LF Spouse, family, school children, PRI members, ASHA, AWW
AHANA 536 1408315 Positive pregnant women ANC clients
JEET 4234 TB cases Spouse, family and children

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